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Monday, November 24, 2008

Turning Points

There are turning points in all our lives. Some we only recognize in hindsight, while others are immediately obvious.

My life changed completely on the 18th of February, 2002, four days before my 55th birthday.

I went to see the doctor for a routine physical after a blood draw to renew a standing prescription for a statin. I had been placed on the statin a couple of years earlier by a previous doctor who said, "your cholesterol is a little high", but you don’t need to worry - we have a pill that fixes that." He prescribed Lipitor 20mg. He never mentioned my 120Kg (260lbs) weight, or my fasting BG’s of 7.9mmol/l(140mg/dl), or diet, or exercise, or even the hint of diabetes. Just the instruction to "take this pill." So I took the pill, and changed nothing else. I was fat and happy. Does that sound familiar to anyone?

Then, on the day my life changed, I sat in the doctor’s office and went into shock as he told me I had leukemia. You thought I was going to say Type 2 Diabetes, didn’t you? Nope – on that day in February 2002 he told me I had CLL. Happy birthday...

I went home in a daze. But by the time I reached home, I had made up my mind to be “officially retired” and that I was going to do some of the things I had always wanted to do. I was not going to die with my song unsung. So I told my wife, as she opened the door, that I was going to travel around the world. I had always wanted to travel but always spent the time or money on something more important or more responsible. It was only later in the day I got up the courage to tell her why. A year later we went around the world for the first time.

Over the next two months I went through all the fun things of confirming my cancer diagnosis; a multitude of blood tests and a bone marrow aspiration. I got on the Web and searched for things I could do to help myself beat it. I found nothing.

The depression of diagnosis set in. I was told I was on “W&W: Watch and Wait." Wrong. “W&W” really means “Wonder and Worry.”

And then, in early May I was told by my doctor I also had Type 2 diabetes. Oh joy. But this was different. The doc told me to get a meter, and suggested I test fasting and pre-dinner blood glucose levels, and gave me targets for these numbers. What he didn’t give me was any advice on how to achieve those targets, except to "lose 8% of your body-weight."

The CLL diagnosis had primed me. There I was, all frustrated and depressed, and suddenly I had a goal that I could achieve. I designed my own weight-loss cooking and eating plan, and put it into practice. And it worked. When I lost the 8%, I just kept going. But it wasn’t enough. My A1C only dropped from 8.2% to 7.5%, despite my weight loss. So I started searching for more information. Over the next couple of months, I attended dietician’s appointments and a course with a dietician. My weight loss stalled and my blood sugars got worse as I started adding extra carbohydrates to follow the dietician’s advice. And then, like a new world, I discovered the anarchy of Usenet’s diabetes groups and eventually the most powerful, simple, logical advice I’ve seen before or since for new type 2 diabetics.

This advice is written by a diabetic named Jennifer. In essence, she says to test after you eat to see what your food does to you. Then change what you eat to improve the results next time. That’s basically it. So simple, but so incredibly effective and powerful if you think about it and then put it into practice. Naturally, everyone who uses it adapts it for themselves. I modified it for my own use. Of course, it is simplistic to concentrate only on blood glucose levels, as other aspects of nutrition had to be reviewed as I made those changes. But I always made blood glucose control the first priority.

Serendipity is a wonderful thing. These days I spend a lot of my time trying to persuade newly diagnosed diabetics to follow that testing advice and I am out-spoken on the effects of diet on diabetes, but I make no claims about diet and leukemia. But something odd happened. My CLL numbers also all improved since I took control of my diet.

For several years I was involved in the excellent ACOR mailing list for support and information for the CLL, eventually becoming one of the list managers. My improvement led to me resigning from that a year ago; it became increasingly difficult to see old friends passing away or in pain as I improved. If the Sword of Damocles drops and the numbers start rising again I’ll return, but for now I just see the haemo a couple of times a year and get on with the rest of my life.

My haematologists remind me that it’s serendipitous, but they also tell me to keep doing what I’m doing. That sounds like good advice to me, so I will.

PS This was the first of three posts I wrote as a guest columnist on dLife.com. I have received permission to re-post them on my blog so that they don't get lost with time.

Cheers, Alan
Everything in Moderation - Except Laughter


Margie's Musings said...

Thank you, Alan, your blog has been very helpful for Bob, my husband.

Noona Tonga said...

Thank you Alan. I know that you are an lnspiration to those who have read your story. I just read my blood sugar after having breakfast and it was 6.7%. I am normally 5.6%. I was drinking grape juice but was told tbat it is high i sugar. I will stop.

Alan said...

Hello Noona. I suspect your results were in mmol/l, not percent. Correct me if I am wrong. 6.7 is OK. How long after breakfast did you test? I suggest you test one hour after you finish your meals.

I'm glad you are no longer drinking fruit juices. Please read this, it may help: http://loraldiabetes.blogspot.com.au/2006/10/test-review-adjust.html